Monday, December 30, 2013

Febrile Seizures

Today Henry had another seizure.

This is number eight since the  end of August.


My sweet little boy has and EIGHT freak'n seizures the past 4 months.

It has gone something like this.

One in August with croup.  This was the first and at the time we were not even sure he had a seizure because we caught the tale end of it because it was at night and this was all new to us.  But the ER doctor said it may have been a febrile seizure (a seizure brought on by a fever)  We read up on it.

Then the end of September, he had another one at night when he had croup AGAIN.  This time we saw more of the seizure and knew.

Then the saturday after Thanksgiving he had three.  THREE in one day.  He had a sickness and had a seizure at nap so we  went to the ER again and they diagnosed the ear infection.  However his temp got to a scary 104 on the ride home and he had a seizure in the car and again at home.

Then a week ago Henry had a bad cold and had a seizure at night and then again in the evening when I tried to give him a bath. NOTE: IF YOUR KID HAS A FEVER DO NOT GIVE THEM A BATH!!  If they shiver even a bit their body thinks it is cold and their temp rises and this is what caused his seizure because his temp was rising.

That brings us to today.  Henry had been feeling better.  His fever broke Christmas morning and the last few days he has had a cough and lots of snot, but no temp.  He was in a great mode this morning.  His temp was a perfect 97.3 and he was happy to go to school.  Then around 4:15 I get a call from his daycare and just knew.  Henry had just had a seizure and was coming out of it.  I can't even remember if I turned my computer off, I just grabbed all my shit at work and left as I talked to the teacher.  Apparently he had been outside playing and was running around when they noticed he stumbled a few times and then fell to the ground as the teacher was grabbing for him.  She noticed his eyes rolled in the back of his head and him shaking.  The shaking lasted a minute or so but his body was tense for about 10 minutes. (longer than normal) They had carried him inside while they were talking to me.  sigh.

The thing about this seizure is we don't know if a temperature was involved.  When I got there he didn't feel hot.  But he had been outside playing in a snow suit, coat, mittens, did he have a mild temp and overheat?!  Is that even possible?!  (the doctor we talked to said not as likely, but i still wonder.)  Was there a temp and it just went down or is this infact a real seizure?!?!  

We took him to the ER and he still didn't have a temperature.  He also showed no signs of an ear infection (though those come on quickly and he could always have one in a day), no respiratory problems, no major red flags or concerns....well except for the biggest concern, that our child has had EIGHT seizures the past 4 months with SIX in the last month and ONE that we don't have a cause for.  Febrile or not, that is WAY to many seizures in a short amount of time for a two year old.

At this point we have NO answers.  Three trips to the ER, many doctor appointments, and we have no answers on what this is.  And in the meantime we have a doctors appointment not scheduled until the 28th to get him into a neurologist.  It was agreed tonight that myself and Henry's doctor will try to get an urgent appointment.  If nothing, we are looking in Cleveland or Columbus.  This child NEEDS to get into a doctor.  Like yesterday.  We need to make sure he is OK and figure this all out.

For me I am a mess.  As I write this post I have looked into his video monitor no less than 8 times a minute.  I crank it up so loud at night it is almost impossible to sleep, not like I can sleep anyways.  I take his temperature ALL the freak'n time. I even went in his room tonight and took his temp while I wrote this.  I can't concentrate on anything but him.  I am tempted to pull him out of daycare so he isn't around germy kids.  The questions in my head.  What it could be.  What it couldn't be.  What does it mean for him and his future.  Yes, things I shouldn't think about but I do.  I am a total mess and with no answers and him having a seizure with no temp or a very low temp throws a curve ball in everything we have thought the past few months.  New questions and new thoughts and answers.

My little boy.  My sweet, sweet boy.  I hope we find out answers really soon.

(On the upside he had his first Popsicle today and loved it!)

Update: December 31st in the ER again with seizure 9.  On the upside we got seizure medicine and an earlier Neurologist appointment.

Wednesday, December 18, 2013

SO MUCH TO DO! SO MUCH TO DO! Is This What the Holiday’s Are About?!?!

This time of year.  Oh this time of year.

I love this time of year.  It really is my favorite.  I love giving and let’s be honest, receiving.  I love the snow and the decorations and the cookies and the festivities and the music and family.  I love it all!!

And it is all those things and so much more that also make this time of year so stressful and that make me frustrated during the time of year that I love so much.


I am sure I am not the only one.  We ALL do this.  It is almost like a ritualistic form of torture that we put ourselves through this time of year.  We put so much on our plate (literally and figuratively) that by the time Christmas day gets here we are exhausted and over the holidays.  To say the holiday spirit is being sucked out of me quickly is an understatement.  Though at work I am trying to maintain the spirit I have left by dressing up!!
 (Those are ornament bulb earrings & a fun green braclet!)

And the thing that sucks, is most* of the time I do all this to myself.  I create the stress.

Right now I have this to do list:

- Order Christmas, nah, New Years Cards
- I still have Christmas gifts to buy (a few people I still have no clue what to get!)
- Make cookies (extra for his school)
- Clean House
- Wrap gifts
- Send gifts to a couple friends
- Figure out Christmas dinner
- Buy gift for work exchange
- Make food for work
- Go grocery shopping (which I don’t think I have done in a couple weeks except for basics)
- Put Henry’s gifts together
- Plan meals for the holidays
- Plan Christmas get together

Not to mention things I want to do with Henry like take him to the Lights Before Christmas, build a gingerbread house, bake cookies with him, play in the snow, enjoy this time of year!!!

On top of that we are ALL STILL sick and I have an ear infection and I have to go to the hospital for a chest X-Ray and all of it just makes feel blah.

I just have NO time to get everything I want done and I am stressing myself out and making myself feel like crap because I can’t get it all done.


"'And there were in the same country shepherds abiding in the field, keeping watch over their flock by night. And, lo, the angel of the Lord came upon them, and the glory of the Lord shone round about them: and they were sore afraid. And the angel said unto them, Fear not; for, behold, I bring you tidings of great joy, which shall be to all people.  For unto you is born this day in the city of David a Savior, which is Christ the Lord.  And this shall be a sign unto you: Ye shall find the babe wrapped in swaddling clothes, lying in a manger.  And suddenly there was with the angel a multitude of the heavenly host praising God, and saying, Glory to God in the highest, and on earth peace and goodwill towards men.'"

"...That's what Christmas is all about, Charlie Brown……er, Jenn"

I need to STOP. 

I need to BREATHE.



(ok, I am done talking loudly!  I just have trouble controlling the volume of my voice….or fingers)

I feel some strengths of mine are also the weaknesses that create this stress. That is planning/entertaining/organization.  I envision things a certain way and get frustrated when they don’t turn out….and with a child, they don’t always turn out.  I get caught up in the moment and forget to STOP and take the moment IN.   I may not want things to be perfect by I want them to be loved by all and if I think one thing went wrong then it ALL went wrong.   I plan and plan and plan and want things to follow that plan exactly….if dinner is suppose to be at 5:15 it is AT 5:15, not 5:20.  

I am definitely not a go with the flow kind of person.  I have list upon list  upon list and cannot deviate from that.

You see where I am going with this?! 

Yeah, I sound AWESOME to be around during the holidays, no?!

As great as some of my strengths in the details and planning are, they also are the things that hinder me or that I obsess about or that make me miss the moments I shouldn’t miss.

I have tried hard since Henry was born to STOP.  Ok, this last year I have tried.  In some ways I have succeeded and others I fall back into my old ways. 

Like last Friday Henry has his school program.  I was SO excited for this because I thought it would be a great memory.  I got off work a little early (not early enough apparently) and picked up Henry and made a cheese tray and got him some pizza and Terry and I got him ready.  We were rushing rushing rushing.  Henry is going the potty like a big boy (YAY!!), but I was just like…come on, wear a diaper don’t pee in the potty which he didn’t like.  I am not mad or yelling, just short and snippy because we have to go!!  We get there 3 minutes late and I grab Henry from the car and Terry parks it and we run in and I basically throw him to the teachers and see my baby reaching out to me, confused at what is going on….but I have to get him to the program, right?!  Well apparently they start right on time and we missed the toddler performance.  Then we see Henry at the end in the finale and he is looking for us and looks so sad, and we are in the back waving but he can’t see us.  He looks so uncomfortable and sad and I just want to grab him….but NO, I had to get him up there to make memories!!  And while I was recording him there must have been a smudge on the camera because it is always blurry and auto focusing so I have a horrible video.  So we were just going to leave because we were annoyed.  We get outside and I say “great, like the night wasn’t bad enough he now is going to miss Santa”.  

I stopped.  Why did he have to miss Santa.  We had nowhere to be.  We were just annoyed that things didn’t go as planned.  Henry could still have fun with his friends & see Santa.  So we went back in.  Henry had cookies and talked to his teachers and saw (the jankiest) Santa and HE HAD FUN!!  The joy on his face with Santa was like no other.  (be still my heart)

That is what matters, right?!  So I got a crappy video, I was there and saw HIM.  So he missed singing, he sings at home.  We then drove around and looked at Christmas lights and the night as a family wasn’t perfect or as planned…but it was also pretty darn awesome!

I am trying to accept that not everything is going to get done.  That not everything will be perfect or go as I planned.  That if I keep focusing on what I “need” to do I am going to miss the most important things.  If I keep trying to create memories I am going to miss the ones infront of me that happen all on their own.

I admit it is hard, but I am trying.  Tonight I am going home and making a list of what NEEDS done.  Ok, really…you can’t change everything about me.  This girl still needs her lists.  But I am trying. 

What is more important to me, a clean house or making a gingerbread house with my son?!  Getting out Christmas New Year Cards or curling up on the couch and watching Christmas movies with Henry?!  Planning a big meal for Christmas or playing in the snow with Henry?!  Um, no question….my son wins EVERY time. And those, those moments are where the memories are made.

THAT is what I need to focus on. The time spent with my family.  Of course, there are things that I can’t get around and need to do….but I also don’t need to make everything “perfect” or try to do it all. 


So how do YOU handle the holidays?!  Have you learned to relax and take it easy?  Are you crazy like me?!  Somewhere in the middle?  What do you do to relax and ENJOY this time of year?

(Yep, this is how I feel too little buddy.)

*I say most because there are other people who do make this time of year more stressful then it needs to be…but that is an entirely different and private post.  But we all know who those type of people are!